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Tom Goode

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$1,725 of $1,000 team's target.

Raised by 0 people in days for Captain Courageous Children's Medical Research Foundation Ltd

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Captain Courageous

Story

Hi there,

 

I have decided to enter the 2014 Pub 2 Pub "fun" run to raise much needed funds for the Captain Courageous Foundation. 

 

Read more at:  https://www.google.com/url?q=http://www.dailytelegraph.com.au/newslocal/northern-beaches/dad-tom-goode-to-run-pub-fun-run-for-best-friends-courageous-son/story-fngr8hax-1227001497906&sa=U&ei=uYnZU5qyEtCHuASm34CoBQ&ved=0CAYQFjAA&client=internal-uds-cse&usg=AFQjCNF_zktpy7EY8zfXW0nqumzzeebrmw 

 

My best mate had a little boy a day after my youngest boy was born. Both called Angus, these boys now lead  wildly different lives.  At five weeks Angus became desperately ill with chronic anemia; he had two blood transfusions within 12 hours and three more within a week. After a bone marrow biopsy at eight weeks, Angus was diagnosed with Diamond Black-Fan Anemia (DBA).

 

Only around 800 people suffer from DBA worldwide. This rare blood condition - where the body does not produce enough red blood cells to transplant oxygen around the body - is caused by a failure within the bone marrow. DBA is mostly a sporadic disease, rather than a hereditary one; it is life threatening and there is no known cure. Treatment consists of regular blood transfusions, coupled with drugs to remove the build-up of iron in the body caused by the disease. It is a time-consuming and often painful process.

 

By the time he is twenty he will have had more than 250 transfusions which equates to 230 litres of blood. That is the same amount of blood contained in 50 grown men.

 

The aim of the Foundation is broader than fhe remit of DBA - it is to help find a cure for children who suffer a life threatening Bone Marrow Failure disease. Due to the rarity of these diseases, global research dollars are very limited. However, whilst these diseases are rare, unlocking the cause of these diseases could not only lead to a cure for these courageous children, but potentially a break through for more common blood diseases such as Leukemia, with some inroads already made on this front by researchers funded by the Foundation.

 

Through here you can easily support my efforts by making a secure donation. I would also really appreciate it if you could share my page above or comment below so more people know about it.

Click 'Donate Now' to make a secure online donation.

All donations over $2 are tax deductible and you will be issued with a DGR receipt via email as soon as you make a donation.

Thanks so much for your support.  

 

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Captain Courageous

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    Captain Courageous Children's Medical Research Foundation Ltd

    The aim of Captain Courageous is to help find a cure for children who suffer a life threatening Bone Marrow Failure disease. These children endure so much just to survive. Constant blood testing, monthly blood transfusions, steroid usage, nightly injections due to iron overload and so much more. There is also the added risk of a bone marrow transplant. They need a chance, a donor, a miracle, a cure. Due to the rarity of these diseases, global research dollars are very limited. However, whilst these diseases are rare, unlocking the cause of these diseases could not only lead to a cure for these courageous children, but potentially a break through for more common blood diseases such as Leukemia. Every dollar we raise will assist in speeding up the research to accelerate the path to a cure. Your donation will make a difference.

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    Created by

    Tom Goode

    for Captain Courageous Children's Medical Research Foundation Ltd

    Fundraising for

    is simply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry's standard dummy text ever since the 1500s.

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    Tom Goode's Total Team Totals

    $1,725 of $1,000 target

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    $1,725 of $1,000 target

    0 people in days